Prayer Request Inflammatory Breast Cancer - Page 5

Vegas_Dave · 07:51 PM

UPDATE 2/5

NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9.

Thank you everyone for your support and prayers.

----------------------------

So right now, we are having to wait a few days to rule out an infection that is likely not the culprit of whats going on, but it looks more and more likely that my wife might have Inflammatory Breast Cancer

This is the rarest and deadliest form of breast cancer because there is no early detection and it doesnt show up with other cancer screenings.

IBC accounts for only 1-6% of breast cancer cases but it accounts for over 20% of breast cancer deaths and itself has about a 40% survival rate beyond 5 years.

We dont know for 100% certainty that this is what she has but as each day goes by, it becomes more likely that this is thre reality that we are about face.

Prayers would of course be appreciated.

-------------------------------------------------

update Sunday 1/25

Thanks guys.

Another 24 hours has pased and still no response to the antibiotics (3rd dose, 10 days the first 2 doses and now 72+ hours on the 3rd dose) and with each passing hour we feel closer and closer that IBC is the real culprit.

If there is no imrpovement by tomorrow morning, we are going to insist that the doctor's start the tests to find out whether this is IBC or not. My wife's family has a history of cancer's so the more and more likely we believe it to be.

My wife finally opened up to me last night about everything that she has been feeling/thinking though I already knew as it has been the same things that I have been feeling/thinking.

I have been through a lot of difficult things in my life and I know that I can face this on my own personal level, but this time I have my wife and 3 young boys (ages 6, 4 & less then 3 months) to guide through this as well. I know that I can, it just isn't going to be easy.

------------------------------------------

Update Monday 1/26

Well, as we expected, no improvement yet. We have been fighting with 3 different medical practices/offices in order to get in so that we can just get an f'ing referral to the oncologist. I really hate healthcare sometimes.

And of course, her doctor changed practices as of this week but is taking a week off before making the switch, so we cant get ahold of her at all this week.

My wife just finished screaming at the lady dealing with call in center for her practice that she has been going to shouting "look, I'm a 26 year old wife and mother of 3 who likely has an advanced stage of cancer, I need to get in today and cannot wait 72 hours for a call back like it took last time"

If we havent gotten in anywhere by noon, we are heading to the ER and will get the referral that way.

---------------------------------------

Update Tuesday 1/27

After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist.

She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound.

Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him.

Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing.

So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on.

I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot.

I really truly do hope that she is right

----------------------------------------

Update 2/2

So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update).

A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought.

At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno.

She still stated that she didnt think it was IBC but did decide to finally do the biopsy.

So now we have to wait until Thursday for the biopsy results.

**Donger** · 01-27-2009, 02:01 PM

Quote:

Originally Posted by Vegas_Dave

Update Tuesday 1/27

After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist.

She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound.

Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him.

Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing.

So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on.

I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot.

I really truly do hope that she is right

Mastitis? I wouldn't hope that on any lady, but in your case, I hope so.

go bo · 01-27-2009, 10:29 PM

best wishes to your wives

and to both of you

and to everyone involved in the fight against cancer...

my brother died from brain tumors a while back...

it's scary stuff, scary stuff indeed...

again, best wishes for favorable outcomes...

Chief Henry · 01-28-2009, 08:14 AM

More prayers have been said for your family.

**DaFace** · 01-28-2009, 03:15 PM

Since it looks like this may be an ongoing thing, I'm going to go ahead and unstick this thread for now. Dave, best of luck, and please do keep us updated as things progress.

Vegas_Dave · 02-02-2009, 06:37 PM

Update 2/2

So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update).

A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought.

At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno.

She still stated that she didnt think it was IBC but did decide to finally do the biopsy.

So now we have to wait until Thursday for the biopsy results.

**Buck** · 02-02-2009, 06:39 PM

Quote:

Originally Posted by Vegas_Dave

Update 2/2

So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update).

A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought.

At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno.

She still stated that she didnt think it was IBC but did decide to finally do the biopsy.

So now we have to wait until Thursday for the biopsy results.

Good Luck man.

**DaFace** · 02-02-2009, 06:39 PM

Well, at least you'll finally have a solid answer - one way or another. Here's hoping you get the answer you're looking for so that you can sigh a breath of relief!

Vegas_Dave · 02-05-2009, 07:53 PM

UPDATE 2/5

NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9.

Thank you everyone for your support and prayers.

**DaFace** · 02-05-2009, 07:56 PM

Congrats man! That's great news. At least now you can breathe a sigh of relief.

**Buck** · 02-05-2009, 07:58 PM

Congrats Dave.

Make sure you guys keep getting checkups.

Great news, man!

**SAUTO** · 02-05-2009, 08:01 PM

good to hear bro

RJ · 02-05-2009, 08:20 PM

Dave, that's great news. I'm sure the weight of the world has been lifted from you both. Best of luck from here.

FAX · 02-05-2009, 08:26 PM

Awesome. Thanks for the update.

FAX

ZepSinger · 02-05-2009, 10:07 PM

Quote:

Originally Posted by Vegas_Dave

UPDATE 2/5

NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9.

Thank you everyone for your support and prayers.

The power of prayer, man. I'm very happy for you guys!!!

Z

**Dartgod** · 02-05-2009, 10:34 PM

Great news, Dave!

01-24-2009, 04:35 PM
Vegas_Dave Veteran Join Date: Jun 2002 Location: Las Vegas, NV Casino cash: $-1355280	Inflammatory Breast Cancer UPDATE 2/5 NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9. Thank you everyone for your support and prayers. ---------------------------- So right now, we are having to wait a few days to rule out an infection that is likely not the culprit of whats going on, but it looks more and more likely that my wife might have Inflammatory Breast Cancer This is the rarest and deadliest form of breast cancer because there is no early detection and it doesnt show up with other cancer screenings. IBC accounts for only 1-6% of breast cancer cases but it accounts for over 20% of breast cancer deaths and itself has about a 40% survival rate beyond 5 years. We dont know for 100% certainty that this is what she has but as each day goes by, it becomes more likely that this is thre reality that we are about face. Prayers would of course be appreciated. ------------------------------------------------- update Sunday 1/25 Thanks guys. Another 24 hours has pased and still no response to the antibiotics (3rd dose, 10 days the first 2 doses and now 72+ hours on the 3rd dose) and with each passing hour we feel closer and closer that IBC is the real culprit. If there is no imrpovement by tomorrow morning, we are going to insist that the doctor's start the tests to find out whether this is IBC or not. My wife's family has a history of cancer's so the more and more likely we believe it to be. My wife finally opened up to me last night about everything that she has been feeling/thinking though I already knew as it has been the same things that I have been feeling/thinking. I have been through a lot of difficult things in my life and I know that I can face this on my own personal level, but this time I have my wife and 3 young boys (ages 6, 4 & less then 3 months) to guide through this as well. I know that I can, it just isn't going to be easy. ------------------------------------------ Update Monday 1/26 Well, as we expected, no improvement yet. We have been fighting with 3 different medical practices/offices in order to get in so that we can just get an f'ing referral to the oncologist. I really hate healthcare sometimes. And of course, her doctor changed practices as of this week but is taking a week off before making the switch, so we cant get ahold of her at all this week. My wife just finished screaming at the lady dealing with call in center for her practice that she has been going to shouting "look, I'm a 26 year old wife and mother of 3 who likely has an advanced stage of cancer, I need to get in today and cannot wait 72 hours for a call back like it took last time" If we havent gotten in anywhere by noon, we are heading to the ER and will get the referral that way. --------------------------------------- Update Tuesday 1/27 After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist. She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound. Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him. Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing. So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on. I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot. I really truly do hope that she is right ---------------------------------------- Update 2/2 So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update). A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought. At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno. She still stated that she didnt think it was IBC but did decide to finally do the biopsy. So now we have to wait until Thursday for the biopsy results. Last edited by Vegas_Dave; 02-05-2009 at 07:51 PM.. Reason: updates
Posts: 1,879

01-27-2009, 10:29 PM	#62
go bo Flop = Man of Steel!! Join Date: Nov 2002 Location: independence Casino cash: $10006405	best wishes to your wives and to both of you and to everyone involved in the fight against cancer... my brother died from brain tumors a while back... it's scary stuff, scary stuff indeed... again, best wishes for favorable outcomes...
Posts: 36,678

01-28-2009, 08:14 AM	#63
Chief Henry MVP Join Date: Aug 2000 Location: IOWA Casino cash: $10005088	More prayers have been said for your family. __________________ Patrick Mahomes...The only QB to ever play in the NFL with at least 5,000 passing yards in a single season and 5,000 passing yards in a single college season.
Posts: 8,361

01-28-2009, 03:15 PM	#64
DaFace Kind of a mod Join Date: Aug 2005 Location: Donkey Land Casino cash: $-1623101	Since it looks like this may be an ongoing thing, I'm going to go ahead and unstick this thread for now. Dave, best of luck, and please do keep us updated as things progress.
Posts: 53,113

02-02-2009, 06:37 PM	#65
Vegas_Dave Veteran Join Date: Jun 2002 Location: Las Vegas, NV Casino cash: $-1355280	Update 2/2 So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update). A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought. At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno. She still stated that she didnt think it was IBC but did decide to finally do the biopsy. So now we have to wait until Thursday for the biopsy results. __________________ Lastly, Redrum_69:
Posts: 1,879

02-02-2009, 06:39 PM	#67
DaFace Kind of a mod Join Date: Aug 2005 Location: Donkey Land Casino cash: $-1623101	Well, at least you'll finally have a solid answer - one way or another. Here's hoping you get the answer you're looking for so that you can sigh a breath of relief!
Posts: 53,113

02-05-2009, 07:53 PM	#68
Vegas_Dave Veteran Join Date: Jun 2002 Location: Las Vegas, NV Casino cash: $-1355280	UPDATE 2/5 NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9. Thank you everyone for your support and prayers. __________________ Lastly, Redrum_69:
Posts: 1,879

02-05-2009, 07:56 PM	#69
DaFace Kind of a mod Join Date: Aug 2005 Location: Donkey Land Casino cash: $-1623101	Congrats man! That's great news. At least now you can breathe a sigh of relief.
Posts: 53,113

02-05-2009, 07:58 PM	#70
Buck Take a Chill Pill Join Date: Nov 2006 Location: South Carolina Casino cash: $6220295	Congrats Dave. Make sure you guys keep getting checkups. Great news, man!
Posts: 44,604

02-05-2009, 08:01 PM	#71
SAUTO Shit Join Date: Jun 2008 Casino cash: $10039067	good to hear bro
Posts: 55,715

02-05-2009, 08:20 PM	#72
RJ Supporter Join Date: Oct 2000 Location: In a shotgun shack Casino cash: $9895202	Dave, that's great news. I'm sure the weight of the world has been lifted from you both. Best of luck from here.
Posts: 14,937

02-05-2009, 08:26 PM	#73
FAX testing ... 1, 2, 3 Join Date: Oct 2004 Location: Tennessee Casino cash: $6753759	Awesome. Thanks for the update. FAX
Posts: 44,492

02-05-2009, 10:34 PM	#75
Dartgod Wasted away again... Join Date: Aug 2000 Location: in Margaritaville Casino cash: $3840000	Great news, Dave! __________________ If you shed a tear for me, please make it a tear of joy. -Joe Tracy (Nzoner) . .
Posts: 52,169