Prayer Request Inflammatory Breast Cancer - Page 2

Vegas_Dave · 07:51 PM

UPDATE 2/5

NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9.

Thank you everyone for your support and prayers.

----------------------------

So right now, we are having to wait a few days to rule out an infection that is likely not the culprit of whats going on, but it looks more and more likely that my wife might have Inflammatory Breast Cancer

This is the rarest and deadliest form of breast cancer because there is no early detection and it doesnt show up with other cancer screenings.

IBC accounts for only 1-6% of breast cancer cases but it accounts for over 20% of breast cancer deaths and itself has about a 40% survival rate beyond 5 years.

We dont know for 100% certainty that this is what she has but as each day goes by, it becomes more likely that this is thre reality that we are about face.

Prayers would of course be appreciated.

-------------------------------------------------

update Sunday 1/25

Thanks guys.

Another 24 hours has pased and still no response to the antibiotics (3rd dose, 10 days the first 2 doses and now 72+ hours on the 3rd dose) and with each passing hour we feel closer and closer that IBC is the real culprit.

If there is no imrpovement by tomorrow morning, we are going to insist that the doctor's start the tests to find out whether this is IBC or not. My wife's family has a history of cancer's so the more and more likely we believe it to be.

My wife finally opened up to me last night about everything that she has been feeling/thinking though I already knew as it has been the same things that I have been feeling/thinking.

I have been through a lot of difficult things in my life and I know that I can face this on my own personal level, but this time I have my wife and 3 young boys (ages 6, 4 & less then 3 months) to guide through this as well. I know that I can, it just isn't going to be easy.

------------------------------------------

Update Monday 1/26

Well, as we expected, no improvement yet. We have been fighting with 3 different medical practices/offices in order to get in so that we can just get an f'ing referral to the oncologist. I really hate healthcare sometimes.

And of course, her doctor changed practices as of this week but is taking a week off before making the switch, so we cant get ahold of her at all this week.

My wife just finished screaming at the lady dealing with call in center for her practice that she has been going to shouting "look, I'm a 26 year old wife and mother of 3 who likely has an advanced stage of cancer, I need to get in today and cannot wait 72 hours for a call back like it took last time"

If we havent gotten in anywhere by noon, we are heading to the ER and will get the referral that way.

---------------------------------------

Update Tuesday 1/27

After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist.

She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound.

Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him.

Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing.

So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on.

I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot.

I really truly do hope that she is right

----------------------------------------

Update 2/2

So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update).

A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought.

At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno.

She still stated that she didnt think it was IBC but did decide to finally do the biopsy.

So now we have to wait until Thursday for the biopsy results.

memyselfI · 01-25-2009, 01:12 PM

Quote:

Originally Posted by Vegas_Dave

Thanks guys. Another 24 hours has pased and still no response to the antibiotics (3rd dose, 10 days the first 2 doses and now 72+ hours on the 3rd dose) and with each passing hour we feel closer and closer that IBC is the real culprit.

If there is no imrpovement by tomorrow morning, we are going to insist that the doctor's start the tests to find out whether this is IBC or not. My wife's family has a history of cancer's so the more and more likely we believe it to be.

My wife finally opened up to me last night about everything that she has been feeling/thinking though I already knew as it has been the same things that I have been feeling/thinking.

I have been through a lot of difficult things in my life and I know that I can face this on my own personal level, but this time I have my wife and 3 young boys (ages 6, 4 & less then 3 months) to guide through this as well. I know that I can, it just isn't going to be easy.

I'm really hoping and praying for the best here. Please keep the faith.

Fritz88 · 01-25-2009, 01:13 PM

Vegas Dave, I wish both of you all the best.

I do not know if this is relevant or not but my friends wife died because the hospital misdiagnosed her. She had a breast cancer and they only assumed that any complications would happen below her breasts (as of many cases) but it turned out that in her case (1 in every 100,000) she had complications that caused a tumor in her brain, died within a week.

My prayers to you bro. It's really tough. Good luck.

**DeezNutz** · 01-25-2009, 01:16 PM

Wishing you nothing but the best.

Stay strong. Keep faith.

**Dylan** · 01-25-2009, 01:20 PM

Dave:

Forever in my prayers....

Hydrae · 01-25-2009, 01:28 PM

Thoughts and prayers for you and yours. Please do keep us informed as you find out more.

ZepSinger · 01-25-2009, 01:37 PM

I know somewhat how you feel, Dave- my wife had breast cancer 3 years ago. I know very well how you're feeling right now. We were very fortunate in that it was detected very early. Needless to say, my wife and I's prayers are with you and your family. Feel free to pm or call if there's any way in which I can help.

Z

T-post Tom · 01-25-2009, 01:42 PM

Best wishes to you and your family.

rocks · 01-25-2009, 02:58 PM

Our Prayers to you. No matter how good your Dr. is make sure you get a second opinion. He/She will understand. Hang in there and you guys can beat it.

North Dakota Chief · 01-25-2009, 03:02 PM

Keep your head up. Stay positive and up beat.

VAChief · 01-25-2009, 03:15 PM

A prayer for restored health for your wife.

kcfanintitanhell · 01-25-2009, 03:17 PM

Prayers from my fiance and me go out to you. My fiance lost her mom 4 years ago after an 8-year battle with IBC. I actually posted a thread when it happened. You may already have seen this site, but if not...

http://www.ibcresearch.org/

Vegas_Dave · 01-25-2009, 03:29 PM

Quote:

Originally Posted by kcfanintitanhell

Prayers from my fiance and me go out to you. My fiance lost her mom 4 years ago after an 8-year battle with IBC. I actually posted a thread when it happened. You may already have seen this site, but if not...

http://www.ibcresearch.org/

I have actually been to that site, its very (too) informative.

Thanks.

teedubya · 01-25-2009, 04:39 PM

I wouldn't make any jokes with a major concern like this... I wish you wife the best...

mikey23545 · 01-25-2009, 04:51 PM

I am sending out the strongest possible good wishes to you and your wife...Try and be strong for her, Dave...

kcfanintitanhell · 01-25-2009, 06:39 PM

Why isn't this stickied?

01-24-2009, 04:35 PM
Vegas_Dave Veteran Join Date: Jun 2002 Location: Las Vegas, NV Casino cash: $-1355280	Inflammatory Breast Cancer UPDATE 2/5 NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9. Thank you everyone for your support and prayers. ---------------------------- So right now, we are having to wait a few days to rule out an infection that is likely not the culprit of whats going on, but it looks more and more likely that my wife might have Inflammatory Breast Cancer This is the rarest and deadliest form of breast cancer because there is no early detection and it doesnt show up with other cancer screenings. IBC accounts for only 1-6% of breast cancer cases but it accounts for over 20% of breast cancer deaths and itself has about a 40% survival rate beyond 5 years. We dont know for 100% certainty that this is what she has but as each day goes by, it becomes more likely that this is thre reality that we are about face. Prayers would of course be appreciated. ------------------------------------------------- update Sunday 1/25 Thanks guys. Another 24 hours has pased and still no response to the antibiotics (3rd dose, 10 days the first 2 doses and now 72+ hours on the 3rd dose) and with each passing hour we feel closer and closer that IBC is the real culprit. If there is no imrpovement by tomorrow morning, we are going to insist that the doctor's start the tests to find out whether this is IBC or not. My wife's family has a history of cancer's so the more and more likely we believe it to be. My wife finally opened up to me last night about everything that she has been feeling/thinking though I already knew as it has been the same things that I have been feeling/thinking. I have been through a lot of difficult things in my life and I know that I can face this on my own personal level, but this time I have my wife and 3 young boys (ages 6, 4 & less then 3 months) to guide through this as well. I know that I can, it just isn't going to be easy. ------------------------------------------ Update Monday 1/26 Well, as we expected, no improvement yet. We have been fighting with 3 different medical practices/offices in order to get in so that we can just get an f'ing referral to the oncologist. I really hate healthcare sometimes. And of course, her doctor changed practices as of this week but is taking a week off before making the switch, so we cant get ahold of her at all this week. My wife just finished screaming at the lady dealing with call in center for her practice that she has been going to shouting "look, I'm a 26 year old wife and mother of 3 who likely has an advanced stage of cancer, I need to get in today and cannot wait 72 hours for a call back like it took last time" If we havent gotten in anywhere by noon, we are heading to the ER and will get the referral that way. --------------------------------------- Update Tuesday 1/27 After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist. She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound. Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him. Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing. So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on. I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot. I really truly do hope that she is right ---------------------------------------- Update 2/2 So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update). A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought. At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno. She still stated that she didnt think it was IBC but did decide to finally do the biopsy. So now we have to wait until Thursday for the biopsy results. Last edited by Vegas_Dave; 02-05-2009 at 07:51 PM.. Reason: updates
Posts: 1,879

01-25-2009, 01:13 PM	#17
Fritz88 Custom User Title Join Date: Nov 2008 Casino cash: $8505943	Vegas Dave, I wish both of you all the best. I do not know if this is relevant or not but my friends wife died because the hospital misdiagnosed her. She had a breast cancer and they only assumed that any complications would happen below her breasts (as of many cases) but it turned out that in her case (1 in every 100,000) she had complications that caused a tumor in her brain, died within a week. My prayers to you bro. It's really tough. Good luck.
Posts: 12,706

01-25-2009, 01:20 PM	#19
Dylan The Lede Join Date: Aug 2007 Casino cash: $10016591	Dave: Forever in my prayers....
Posts: 33,643

01-25-2009, 01:28 PM	#20
Hydrae MVP Join Date: Jul 2001 Location: Newport, Or Casino cash: $-933000	Thoughts and prayers for you and yours. Please do keep us informed as you find out more. __________________ My 2024 Adopt-A-Chief: Rashee Rice
Posts: 14,853

01-25-2009, 01:37 PM	#21
ZepSinger Veteran Join Date: Oct 2003 Location: Kansas City Casino cash: $10004900	I know somewhat how you feel, Dave- my wife had breast cancer 3 years ago. I know very well how you're feeling right now. We were very fortunate in that it was detected very early. Needless to say, my wife and I's prayers are with you and your family. Feel free to pm or call if there's any way in which I can help. Z __________________ test
Posts: 2,740

01-25-2009, 01:42 PM	#22
T-post Tom Busy in a Kohl's restroom Join Date: Aug 2002 Location: Milk/Honey/Gazland Casino cash: $1947293	Best wishes to you and your family. __________________ You seem nice!
Posts: 22,265

01-25-2009, 02:58 PM	#23
rocks Box of Rocks Join Date: Aug 2004 Location: Joplin Missouri Casino cash: $10004900	Our Prayers to you. No matter how good your Dr. is make sure you get a second opinion. He/She will understand. Hang in there and you guys can beat it.
Posts: 315

01-25-2009, 03:02 PM	#24
North Dakota Chief Banned Join Date: Jan 2009 Casino cash: $10004900	Keep your head up. Stay positive and up beat.
Posts: 51

01-25-2009, 03:15 PM	#25
VAChief Comfortably Numb Join Date: Sep 2000 Location: Virginia Casino cash: $2294657	A prayer for restored health for your wife.
Posts: 5,855

01-25-2009, 03:17 PM	#26
kcfanintitanhell turd polisher Join Date: Mar 2001 Location: Location, Location!!! Casino cash: $8736780	Prayers from my fiance and me go out to you. My fiance lost her mom 4 years ago after an 8-year battle with IBC. I actually posted a thread when it happened. You may already have seen this site, but if not... http://www.ibcresearch.org/ __________________ I do not think country was intended to be sung consistently in tune.
Posts: 1,180

01-25-2009, 04:39 PM	#28
teedubya Most Valuable Poster Join Date: Oct 2003 Casino cash: $9023042	I wouldn't make any jokes with a major concern like this... I wish you wife the best...
Posts: 36,825

01-25-2009, 04:51 PM	#29
mikey23545 MVP Join Date: Aug 2000 Casino cash: $10015321	I am sending out the strongest possible good wishes to you and your wife...Try and be strong for her, Dave...
Posts: 12,314

01-25-2009, 06:39 PM	#30
kcfanintitanhell turd polisher Join Date: Mar 2001 Location: Location, Location!!! Casino cash: $8736780	Why isn't this stickied? __________________ I do not think country was intended to be sung consistently in tune.
Posts: 1,180