Prayer Request Inflammatory Breast Cancer - Page 4

Vegas_Dave · 07:51 PM

UPDATE 2/5

NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9.

Thank you everyone for your support and prayers.

----------------------------

So right now, we are having to wait a few days to rule out an infection that is likely not the culprit of whats going on, but it looks more and more likely that my wife might have Inflammatory Breast Cancer

This is the rarest and deadliest form of breast cancer because there is no early detection and it doesnt show up with other cancer screenings.

IBC accounts for only 1-6% of breast cancer cases but it accounts for over 20% of breast cancer deaths and itself has about a 40% survival rate beyond 5 years.

We dont know for 100% certainty that this is what she has but as each day goes by, it becomes more likely that this is thre reality that we are about face.

Prayers would of course be appreciated.

-------------------------------------------------

update Sunday 1/25

Thanks guys.

Another 24 hours has pased and still no response to the antibiotics (3rd dose, 10 days the first 2 doses and now 72+ hours on the 3rd dose) and with each passing hour we feel closer and closer that IBC is the real culprit.

If there is no imrpovement by tomorrow morning, we are going to insist that the doctor's start the tests to find out whether this is IBC or not. My wife's family has a history of cancer's so the more and more likely we believe it to be.

My wife finally opened up to me last night about everything that she has been feeling/thinking though I already knew as it has been the same things that I have been feeling/thinking.

I have been through a lot of difficult things in my life and I know that I can face this on my own personal level, but this time I have my wife and 3 young boys (ages 6, 4 & less then 3 months) to guide through this as well. I know that I can, it just isn't going to be easy.

------------------------------------------

Update Monday 1/26

Well, as we expected, no improvement yet. We have been fighting with 3 different medical practices/offices in order to get in so that we can just get an f'ing referral to the oncologist. I really hate healthcare sometimes.

And of course, her doctor changed practices as of this week but is taking a week off before making the switch, so we cant get ahold of her at all this week.

My wife just finished screaming at the lady dealing with call in center for her practice that she has been going to shouting "look, I'm a 26 year old wife and mother of 3 who likely has an advanced stage of cancer, I need to get in today and cannot wait 72 hours for a call back like it took last time"

If we havent gotten in anywhere by noon, we are heading to the ER and will get the referral that way.

---------------------------------------

Update Tuesday 1/27

After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist.

She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound.

Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him.

Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing.

So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on.

I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot.

I really truly do hope that she is right

----------------------------------------

Update 2/2

So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update).

A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought.

At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno.

She still stated that she didnt think it was IBC but did decide to finally do the biopsy.

So now we have to wait until Thursday for the biopsy results.

teedubya · 01-25-2009, 11:57 PM

just discovered this after reading about the Resveratrol thing on 60 Minutes...

http://www.sciencedaily.com/releases...0707081848.htm

it may be something worth looking into.

http://www.wholehealth.com/index.cfm...TOKEN=82383880

**Dartgod** · 01-26-2009, 06:01 AM

Thoughts and prayers going out to you and your wife.

Hoping for the best...

Chiefnj2 · 01-26-2009, 08:33 AM

Best of luck to you and your family.

**Mr. Kotter** · 01-26-2009, 08:51 AM

Thoughts and prayers, your way.

Chris Meck · 01-26-2009, 12:19 PM

Dave, my wife Abigail is going through this very thing right now. She was diagnosed in July.

We are several rounds of chemo into it. It's tough.

She has a blog that she's been keeping of her experience:

http://www.hopeismymiddlename.blogspot.com

Hope you find it helpful.

Survival rates are getting better with this all the time, don't let the numbers scare you.

Chris

Coach · 01-26-2009, 12:27 PM

Quote:

Originally Posted by Chris Meck

Dave, my wife Abigail is going through this very thing right now. She was diagnosed in July.

We are several rounds of chemo into it. It's tough.

She has a blog that she's been keeping of her experience:

http://www.hopeismymiddlename.blogspot.com

Hope you find it helpful.

Survival rates are getting better with this all the time, don't let the numbers scare you.

Chris

And my prayers are sent towards your way as well.

**bogey** · 01-26-2009, 12:52 PM

This is horrible. Possitive thoughts going out to you and your wife and kids. I'm so sorry.

**HemiEd** · 01-26-2009, 02:04 PM

I hope things turn for the better soon, all the best to you and your wife.

Gracie Dean · 01-26-2009, 06:33 PM

I just said a prayer for you and your family. Let us know if we can do anything at any time

**Donger** · 01-26-2009, 06:42 PM

I don't pray very often, but I just did for you and your wife. Remain strong.

Otter · 01-26-2009, 07:51 PM

FAX · 01-26-2009, 10:02 PM

I couldn't leave the board this evening without posting here, Mr. Vegas_Dave.

Just want to say that I am very sorry to hear of this. You, your wife, and your family will be in our thoughts and prayers. Words are almost useless in these situations, but I would encourage you not to pay attention to the statistics and just focus on taking things one day at a time.

God bless.

FAX

01-26-2009, 11:37 PM

Puts everything into perspective doesn't it? We'll hold each of you up in our prayers.

Vegas_Dave · 01-27-2009, 09:41 AM

Update Tuesday 1/27

After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist.

She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound.

Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him.

Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing.

So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on.

I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot.

I really truly do hope that she is right

plbrdude · 01-27-2009, 11:08 AM

will keep your wife and you in prayer. also mr chris and his wife.

01-24-2009, 04:35 PM
Vegas_Dave Veteran Join Date: Jun 2002 Location: Las Vegas, NV Casino cash: $-1355280	Inflammatory Breast Cancer UPDATE 2/5 NO CANCER! Oh my gosh. They still dont know whats going on but the fact that the biopsy came back negative has us on cloud 9. Thank you everyone for your support and prayers. ---------------------------- So right now, we are having to wait a few days to rule out an infection that is likely not the culprit of whats going on, but it looks more and more likely that my wife might have Inflammatory Breast Cancer This is the rarest and deadliest form of breast cancer because there is no early detection and it doesnt show up with other cancer screenings. IBC accounts for only 1-6% of breast cancer cases but it accounts for over 20% of breast cancer deaths and itself has about a 40% survival rate beyond 5 years. We dont know for 100% certainty that this is what she has but as each day goes by, it becomes more likely that this is thre reality that we are about face. Prayers would of course be appreciated. ------------------------------------------------- update Sunday 1/25 Thanks guys. Another 24 hours has pased and still no response to the antibiotics (3rd dose, 10 days the first 2 doses and now 72+ hours on the 3rd dose) and with each passing hour we feel closer and closer that IBC is the real culprit. If there is no imrpovement by tomorrow morning, we are going to insist that the doctor's start the tests to find out whether this is IBC or not. My wife's family has a history of cancer's so the more and more likely we believe it to be. My wife finally opened up to me last night about everything that she has been feeling/thinking though I already knew as it has been the same things that I have been feeling/thinking. I have been through a lot of difficult things in my life and I know that I can face this on my own personal level, but this time I have my wife and 3 young boys (ages 6, 4 & less then 3 months) to guide through this as well. I know that I can, it just isn't going to be easy. ------------------------------------------ Update Monday 1/26 Well, as we expected, no improvement yet. We have been fighting with 3 different medical practices/offices in order to get in so that we can just get an f'ing referral to the oncologist. I really hate healthcare sometimes. And of course, her doctor changed practices as of this week but is taking a week off before making the switch, so we cant get ahold of her at all this week. My wife just finished screaming at the lady dealing with call in center for her practice that she has been going to shouting "look, I'm a 26 year old wife and mother of 3 who likely has an advanced stage of cancer, I need to get in today and cannot wait 72 hours for a call back like it took last time" If we havent gotten in anywhere by noon, we are heading to the ER and will get the referral that way. --------------------------------------- Update Tuesday 1/27 After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist. She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound. Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him. Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing. So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on. I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot. I really truly do hope that she is right ---------------------------------------- Update 2/2 So a week ago we had the appointment where the doctor said she really did not think it was IBC (read last update). A few days ago, we started to think we were seeing an improvements. The physical size of the rash/redness was still the same but it seemed to be fading in color - or so we thought. At the follow up appointment this afternoon, the doctor said she wasnt seeing any improvement. Perhaps it had gotten redder from not nursing and then had gone back down to normal now that the milk is starting to dry up. Dunno. She still stated that she didnt think it was IBC but did decide to finally do the biopsy. So now we have to wait until Thursday for the biopsy results. Last edited by Vegas_Dave; 02-05-2009 at 07:51 PM.. Reason: updates
Posts: 1,879

01-25-2009, 11:57 PM	#46
teedubya Most Valuable Poster Join Date: Oct 2003 Casino cash: $9023042	just discovered this after reading about the Resveratrol thing on 60 Minutes... http://www.sciencedaily.com/releases...0707081848.htm it may be something worth looking into. http://www.wholehealth.com/index.cfm...TOKEN=82383880
Posts: 36,826

01-26-2009, 06:01 AM	#47
Dartgod Wasted away again... Join Date: Aug 2000 Location: in Margaritaville Casino cash: $3840000	Thoughts and prayers going out to you and your wife. Hoping for the best... __________________ If you shed a tear for me, please make it a tear of joy. -Joe Tracy (Nzoner) . .
Posts: 52,169

01-26-2009, 08:33 AM	#48
Chiefnj2 In Search of a Life Join Date: Mar 2007 Casino cash: $6684388	Best of luck to you and your family. __________________ Mismanaging the clock.
Posts: 22,540

01-26-2009, 08:51 AM	#49
Mr. Kotter The Dude Abides Join Date: Apr 2001 Location: Dakota Country Casino cash: $3434285	Thoughts and prayers, your way. __________________ "I've always said I worry about legacy and winning rings more than making money at this moment...We see what's going on around the league, but at the same time, I'll never do anything that's going to hurt us from keeping the great players around me.”
Posts: 46,844

01-26-2009, 12:19 PM	#50
Chris Meck MVP Join Date: May 2001 Location: midtown KC Casino cash: $-1115090	Dave, my wife Abigail is going through this very thing right now. She was diagnosed in July. We are several rounds of chemo into it. It's tough. She has a blog that she's been keeping of her experience: http://www.hopeismymiddlename.blogspot.com Hope you find it helpful. Survival rates are getting better with this all the time, don't let the numbers scare you. Chris Last edited by Chris Meck; 01-26-2009 at 12:20 PM.. Reason: spelling
Posts: 19,368

01-26-2009, 12:52 PM	#52
bogey Supporter Join Date: Oct 2007 Location: California Casino cash: $10005290	This is horrible. Possitive thoughts going out to you and your wife and kids. I'm so sorry.
Posts: 2,264

01-26-2009, 02:04 PM	#53
HemiEd Supporter Join Date: Dec 2004 Location: Ozarks Casino cash: $-249436	I hope things turn for the better soon, all the best to you and your wife.
Posts: 34,793

01-26-2009, 06:33 PM	#54
Gracie Dean MVP Join Date: Aug 2000 Casino cash: $10004900	I just said a prayer for you and your family. Let us know if we can do anything at any time
Posts: 12,955

01-26-2009, 06:42 PM	#55
Donger "Think BOOM!" Join Date: Nov 2003 Location: 33.675° N 106.475° W Casino cash: $6979900 VARSITY	I don't pray very often, but I just did for you and your wife. Remain strong. __________________ I think the young people enjoy it when I "get down," verbally, don't you?
Posts: 190,648

01-26-2009, 10:02 PM	#57
FAX testing ... 1, 2, 3 Join Date: Oct 2004 Location: Tennessee Casino cash: $6753759	I couldn't leave the board this evening without posting here, Mr. Vegas_Dave. Just want to say that I am very sorry to hear of this. You, your wife, and your family will be in our thoughts and prayers. Words are almost useless in these situations, but I would encourage you not to pay attention to the statistics and just focus on taking things one day at a time. God bless. FAX
Posts: 44,492

01-26-2009, 11:37 PM	#58
Phobia Guest Casino cash: $	Puts everything into perspective doesn't it? We'll hold each of you up in our prayers.
Posts: n/a

01-27-2009, 09:41 AM	#59
Vegas_Dave Veteran Join Date: Jun 2002 Location: Las Vegas, NV Casino cash: $-1355280	Update Tuesday 1/27 After spending all day on the phone arguing with offices and receptionists etc... we finally made it into a breast specialist. She said that she didnt think it was "likely" that it was IBC but seemed to base that solely on my wifes young age (26) and the fact that she was nursing. She felt that it was much more likely that the ER missed something on the ultrasound that they performed last week so she wanted to do her own ultrasound. Well, just like in the ER, her ultrasound showed nothing. She still said that she felt "reasonably sure" that it wasnt IBC and guessed that it must be an infection related with nursing. She told my wife to stop breast feeding immediately and continue on the antibiotics because if there is bacteria in the milk, it gets reintroduced every time she nurses him. Unfortunately, I was out of the room at this point as the 12 week old baby was fed up with the office as much as I was and so I was not there to dispute her and my wife didnt want to dispute as she was liking what she was hearing. So for now, we are now in a holding pattern waiting for her milk to dry up to then see if the bacterial infection is what is really going on. I still have a sick feeling in my gut about this and fear that we have just delayed the real issue with a dash of hope right now... my gut is usually as right as it is big... so a lot. I really truly do hope that she is right __________________ Lastly, Redrum_69:
Posts: 1,879

01-27-2009, 11:08 AM	#60
plbrdude turd herder extraordiaire Join Date: Jan 2005 Location: hickville,mo Casino cash: $9997165	will keep your wife and you in prayer. also mr chris and his wife.
Posts: 2,249

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